I miss the days when Gemma was alive. I miss being so unbelievably happy. Life was too good to be true so of course something terrible had to shake me to the core, but losing my daughter? My sweet little 2 1/2 month old baby girl didn’t have to be the thing to bring me down. I would rather have lost all my hair, gotten cancer, lost a limb than lose my baby. I lost my soul, my heart, purpose and happiness when she died. Everyday I miss her, everyday I cry for her, and everyday I hope I don’t get pregnant. I’m not ready. I cannot move on and have another baby. I feel as if I’m betraying my baby and moving on. I want her, not another baby. She was my whole world. How can I come back from this? How can I live without her and be happy? She is my happiness. I’m an empty shell without Gemma. My soul is lifeless and there is nothing inside me but pain and agony. I wish I could make it stop.
This picture is what you think it is. That is the first time we saw our beautiful Gemma since we saw her lifeless body at the hospital. I’m not sorry for sharing this causing people sadness or causing people to feel uncomfortable because we live everyday without our daughter. This blog is raw and true just as this photo is. I debated on putting this on here, but its a part of our new life.
My birthday is tomorrow. I actually had forgotten about it until last week and it’s another day I dread. What is there to celebrate? My greatest gift, creation and purpose is no longer here with me. She’s always on my mind and in my heart, but I want her in my arms. The ache and pain never stops, it just seems to happen more often. I miss my daughter. I long for her. I feel as if I’m just floating through life until I see her again. There are so many days I think to myself, was she really here? Did I actually have a baby? The time she was with me was so brief I have to pinch myself and make sure it’s not a dream. A nightmare. I was meant to be a mom. It felt right and as if I was truly happy.
Gemma was definitely a baby that wanted to be held all the time, some people call it spoiled, but I didn’t care. I didn’t care when she was alive and now I’m more thankful for it because I got all those extra cuddles and the closeness. I felt as if there was no way to “spoil” a baby. What’s wrong with them wanting their mommy or daddy? Was it hard to get stuff done? Absolutely, but I wouldn’t change it for the world and I will do the same for my future children. I think I will be the one that will want them all the time versus them needing me. I had talked to Patrick about co-sleeping. I know people say it’s hard to break them of sleeping with you, but I want my children close. I need them close. Gemma slept with me when it was just her and I. I had this bed bassinet though because I was terrified to roll or her or for me to push her out of bed. Having her right in the bed however was so nice, especially because I breastfed. I would just feed and change her right in the bed, then put her down next to me. I didn’t have to get up all the time when she woke up, which was only about 2-3 times a night.
I feel like I’m forgetting what she looked like in my mind. I have pictures, but if I didn’t, would I remember her? I know I’m forgetting other things as well like how she felt in my arms, breastfeeding her, the feel of her skin and just our day to day activities. I want her back so bad. It’s too difficult to keep going without her. I wasn’t supposed to live without my baby. She should be rolling right now and laughing. She isn’t supposed to be in a little ceramic box. I felt as if I tried so hard to be a good person and an even better mother. I know Patrick has come so far from where he used to be. He has made some mistakes in his life that he is still paying for, but he was hoping to teach our children not to make those same mistakes. He was a great dad and would have taught Gemma so much about being a good person to making an impact on this world like he wants to. I feel as if Gemma would have been extremely intelligent and ambitious like her parents, but she never got the chance. We will never be able to see what kind of person she would have been.
I haven’t had the motivation to write in awhile, and Patrick and I have been busy house hunting or working. Unfortunately our grief has not taken a break. Lately it feels as if we are talking about the what ifs or our lost future more often. Our dreams are broken about having a beautiful and happy family.
Yesterday him and I were sitting outside on the swing and talking about how nice it would have been to have Gemma outside with us, for her to feel the grass, hear the birds chirping and just be in awe of the outside. How we would have loved to get a kids/small shallow pool and the three of us sit in it with Gemma enjoying the warm weather, of course Gemma wearing a cute bikini with her cute Buddha belly and rolls galore. I mourn not only for my precious daughter, but for the future we lost. There was so much love but we still didn’t get to keep her. Our heart breaks everyday, over and over again. The deep pain and anguish never ends.
There are times now I see a picture of her and it’s hard to see them. Seeing her brings me so much pain, but seeing her smile and how beautiful she was also brings me joy. It’s strange to feel so much agony and joy from seeing her pictures or watching her videos. I have a new favorite picture, her huge smile melts my heart and puts a smile on my face.
I don’t believe the pain will ever go away. People tell me time will heal, but there’s no way time can heal the hole in my chest. I feel as if getting day to day may just become easier to endure the pain.
Mother’s Day wasn’t too awful. Having my friend’s and family’s love and support definitely helped me get through the day. Of course Mother’s Day with my beautiful Gemma would have been perfect, but it’s not feasible, just another beautiful dream.
Today is such a bad day I don’t want to go on anymore. I want to see Gemma now. I need to hold her, smell her, talk to her and be her mommy. I’ve dreamed about her for so long. I was meant to be a mom, but I blew it. She’s gone. I never got to hear her laugh, her first word, crawling, walking, rolling over (without cheating), teach her how to count, see her first day of kindergarten.. I don’t deserve another child. I couldn’t even keep Gemma alive. She only lived for 9 weeks and 6 days. She wasn’t sick. She could have lived to 90 years old but I killed her. I may have not been there that night, but I put her on her tummy to sleep too. I made it “okay” for her to be on her tummy. I wish I never did and for that mistake it cost my baby her life. I don’t deserve another child. I’m a bad mom. I’m not even a mom anymore. I have no daughter and my milk is gone. I would give my own life if it meant she could come back. I don’t wanna be here. She was my world and reason to be mentally healthy and she’s gone. There is no point anymore.
Patrick and I had finally went to a group support that had people there. The first one we went to was in Fond du Lac. The person running the group had not lost a child, which I would never wish upon anyone, but it would have been nice to talk to someone who knew EXACTLY how we were feeling or what we were going through. Talking to these two ladies at this meeting tonight gave me comfort. I can’t speak for Patrick, but it helped me knowing I’m not alone.
First the two women shared their stories of losing there children. It’s hard for me to tell their stories because I fear I cannot do them justice, but neither woman had gotten to bring their children home. These two women continued to live their lives and have more children. One was nine years ago and the other was two I believe. They still ache and grieve for their children that never had gotten a fair chance, a shot at leaving the hospital, but they live on by talking about them, helping others, and continuing on living their life. We had also shared our story and told them our fears and concerns, which were the same or similar. When the first lady, we’ll call her A, had her child after losing her baby, she told us she was constantly ensuring her baby was breathing, that she only had gotten a few hours a sleep a night. She never got to bring her baby home, but the fear of losing her next child was still there. The other lady, B, was currently pregnant. She also has fears that her baby will be sick, that she will not be able to take this baby home either. She said she’s waiting for the bad news, for the other shoe to drop. A fear her and I both share is that we are afraid and unsure how to separate the next baby from the one we had lost. That it will take the place of the angel baby. We both know our angel babies can never be replaced, but that fear is still there. I’m worried I will try and pick up where I left off with Gemma, treat that baby like they’re her. Gemma was her own person. She will never be forgotten.
Family support also came up. A’s family was not very supportive. Some were but most just moved, don’t talk about her baby or get uncomfortable if they see a picture or hear his name. B’s family was more like mine, which I’m eternally thankful for. Our families talk about our girls, and do things in their memory. Keep in mind A lost her baby nine years ago and B lost hers two years ago.
I had told them something that had hurt me on Easter, which I never thought of doing myself or asking my mom to do it either. I was hurt that my mom had not thought about getting an Easter basket for Gemma. She had gotten one for the three other grandchildren, but not Gemma. I told myself that Gemma doesn’t need one, she’s in heaven, but it still hurt. I felt as if she was forgotten already. I know my mom didn’t mean any harm by it and just like me, I never thought to mention it to her or even do something for Gemma instead. Both women had mentioned that I could still do a basket for Easter or hang a stocking for Christmas. I wish I would have thought about doing that, but I didn’t. They said some women put letters to their child in the stocking, or items in remembrance of them. One of the ladies also had a first birthday party for her baby where the gifts would be donations to the NICU where her baby was and the other would take her other two children out and do something fun in remembrance of her baby. I’m unsure of what we may do because Gemma’s birthday is the day after Christmas and it is also my nephew’s birthday. I don’t want to take away from his birthday, but it’s also my baby’s birthday. I love my nephew, but my baby was my true love. He will have many days to celebrate with his mom and family, my baby only had gotten nine weeks and six days.
I also want to say I do not know either woman’s story, they merely shared a page from their book. I am also by no means judging either woman, their families or how they grieve. I admire both women with how they can continue to go on because most days I want to give up and be with my Gemma. Group was comforting and I know I will continue to go.
It’s been over a month now that I had lost my baby. I’ve never felt more empty, alone, or dead inside than I do now. I’ve struggled with depression since I was a teenager. It was always up and down and had gotten pretty bad before I had Gemma. I finally decided to talk to my doctor a month before I was due to get a hold on it. I didn’t want to get postmortem when I should be taking care of my beautiful baby. My pregnancy was hard because I went through it alone for the most part. Patrick and I live 45 minutes apart, he worked part time, was tending his garden full time, and was in school full time. He wasn’t around much which was extremely difficult for me. I went to almost all my appointments alone and lived by myself. So it was just me and Gemma. I needed to be better for her, to be able to give her the care she deserved, so I did get better. I was on medication and Patrick and I were doing okay so I felt better.
Then Gemma was born. Patrick was around every day for the first week or so, the after that he was busy at home so it was just me and Gemma again. That was hard again. I had to take care of a newborn on my own. He wasn’t around for a couple weeks stopping over here and there. We fought a lot. I was stressed taking care of her alone and she wasn’t really on a schedule yet so I was so tired. I was also breastfeeding so even if he did come around that day to help out, I had to feed her. Still not much of a break. He did eventually come around and step up. It was so nice to have a partner in raising and taking care of Gemma. He would get up with her in the middle of the night change her if she needed it and hand her to me to feed. I did start pumping which was nice because then I got to sleep when he fed her. I miss those days so much, just being home with my baby, having my family whole.
I was only off 6 weeks, which now I’m so angry that’s all I got with her. I would just be going back to work now. Why is it that mothers get such a short time off with their baby? That’s wrong. Other countries get 6 months minimum paid to be off after having a child. If I was with her, maybe she would still be alive. I would have gotten more time with her. But what if I was the one to find her not alive? I could never imagine the pain, seeing her purple and not breathing, giving her CPR and trying to call 911 while trying everything in my power to save my daughter’s life. Patrick did that. That’s a burden I’m thankful I never have to carry, but he does.
I miss her so much. Nothing I do or people say make anything better. Crying in Patrick’s arms gives me comfort, but it doesn’t help. I have been having bad thoughts lately about wanting to be with her. I get so sad because she needs her mommy, she’s just a baby. My heart aches and breaks every time I think of her. She was my baby cakes. Being a mom was the greatest joy I could have ever imagined. She literally was my whole world. How can I go on without her? I want more children, but then I don’t. I can’t. I’m so hurt and broken I can’t foresee having more children. I just want my Gemma back.
Patrick and I are going to a group meeting in Appleton tomorrow night. It’s for people that have had miscarriages, stillbirths and lost a child under a year old. I’m nervous to go, but it will be nice having people around that can truly sympathize with what we’re going through. I will let you know how it goes.
I bought a couple books, but don’t like them. The first one is When a Child Dies, stories of survival and hope edited by Richard S. Hipps and When the Bough Breaks, forever after the death of a son or daughter by Judith R. Bernstein, Ph.D. I want to read some books that relate to my situation of losing a child to SIDS or losing an infant under a year old. I enjoy reading and reading books the help give hope to losing an infant may help me; bring me out of my depression a bit. If anyone has heard of any books, please recommend them.
Easter was a hard day for Patrick and I. Of course we missed Gemma, but it was the first holiday without her. She also had never gotten a single holiday. I wished she could have gotten one. She was alive for New Years and that’s it. I feel as if New Years is a holiday for adults. We were invited to a few Easter celebrations, but I wasn’t up to be around families with children. I didn’t want to be around them because they were going to be having a great time, smiling, laughing and sharing beautiful moments together as they should. It hurt too much to know I would never get those moments with Gemma. I was robbed of all those small, precious moments.
Gemma’s New Year was memorable though. We were only home from the hospital a few days at that point. Patrick was going to change her diaper and she used to get so upset she would scream. When she would scream she would also tense up and poop. So dad was changing her, she was screaming and she shot poop at him. Literally it fired like a cannon. Patrick stood up so fast, Gemma was screaming and I had to help. There we were, mom was holding Gemma’s legs, dad was wiping her and Gemma was crying. I believe she had also spit up on Patrick as well. He was covered in spit up and poop, but we were so happy to be home with our beautiful baby girl. I’m so happy I have these memories and small moments. I wish we could have made more and continued to grow.
That’s what bothers me the most. Everything was perfect. Patrick and I were better than ever, we had beautiful Gemma, we had a routine with who had Gemma when one of us was working, and we were looking for a house so the three of us could be under the same roof finally. I miss those days. What I wouldn’t give to replay the that time we had with her, over and over again. What I wouldn’t do or give to have her back. Why was I given the most precious baby to have her taken from me in such a short period.
My sister had her baby a couple weeks before I had Gemma, so Erza, my sister’s baby girl, and Gemma were close in age. Everyone has been keeping Erza from me because they’re worried seeing her will be too painful. My sister also feels guilty that she still has her baby when I lost mine. I don’t want anyone to feel that way. I want people to cherish the time they have with their children whether they’re newborn or 40 years old. I encourage people to take more pictures, take videos, hug them a little longer, give them a kiss, tell them you love them because you never know when you will lose them. You never expect to lose a baby, but I did. Seeing Erza was just like seeing my niece because she’s not Gemma. They are so different which also made it easier. I just hope my sister won’t take her time with not only Erza for granted, but with her other daughter Elise. That time is so precious.
Erza Mae January 24th, 2018 & Gemma Nova February 15th, 2018 both babies are about 7 weeks old.